Information you provide in our contact form and via email is sent to ATHENA_alportstudy@agility-clinical.com.
Your personal information will only be shared with Regulus, its vendor, Agility Clinical, and/or the study site nearest to you. Your information will NOT be shared with any other party. Regulus and Agility Clinical understand the importance of protecting your information and will use your information for the sole purpose of responding to your inquiry. Once your email has been responded to, the email will be deleted. However, your email will be stored on Agility Clinical servers indefinitely since these data cannot be deleted. The email box will be reviewed once per week and you can expect a response within 7 days or less.
The study site closest to you will receive information you provide in the contact form via email. As such, the email will be retained on their servers indefinitely and will be subject to the privacy and security policies of that medical institution.
We may track the total number of visitors to our website, the number of visitors to each page of our website, IP addresses, and we may analyze these data for trends and statistics in the aggregate, but such information will be in aggregate form only and it will not contain personally identifiable data. Such aggregate information is not linked to any personally identifiable information specific to any individual person.
We may use such aggregate information to analyze trends, administer the website, track browser movement, and gather broad demographic information for aggregate use.
Our website contains links to other websites on the Internet that are not under the control of or maintained by Regulus. These links are provided to you only as a convenience, Regulus is not responsible for the content of such websites.