For Men Living With Alport Syndrome
We recognize that coping with a rare genetic condition like Alport syndrome can present many challenges. Because Alport syndrome affects the kidneys, people living with the condition experience gradual loss of kidney function. This may lead to end-stage kidney disease that requires dialysis or kidney transplant. Other symptoms, such as loss of hearing and vision, can occur during late childhood or early adolescence.
Because Alport syndrome symptoms can worsen over time, it is important to not ignore them. Staying informed and seeking the right support can help ensure your well-being.
If you have been diagnosed with Alport syndrome, your doctor may have developed a treatment plan to help you with your symptoms. Participating in a research study is another option you could consider and discuss with your doctor.
The information you provide is completely confidential. The study team respects and protects your privacy.