Alport Syndrome Research Study

Don't let Alport Syndrome define you

See if you pre-qualify for the HERA research study.

To see if you pre-qualify, Call 844-704-0404 to speak to a study representative

The information you provide is completely confidential. The study team respects and protects your privacy.

Now enrolling: The HERA Study is evaluating an investigational drug to see if it may slow down the progression of Alport syndrome in men living with the condition.

For Men Living With Alport Syndrome

We recognize that coping with a rare genetic condition like Alport syndrome can present many challenges. Because Alport syndrome affects the kidneys, people living with the condition experience gradual loss of kidney function. This may lead to end-stage kidney disease that requires dialysis or kidney transplant. Other symptoms, such as loss of hearing and vision, can occur during late childhood or early adolescence.

Because Alport syndrome symptoms can worsen over time, it is important to not ignore them. Staying informed and seeking the right support can help ensure your well-being.

If you have been diagnosed with Alport syndrome, your doctor may have developed a treatment plan to help you with your symptoms. Participating in a research study is another option you could consider and discuss with your doctor.

To see if you pre-qualify, Call 844-704-0404 to speak to a study representative

The information you provide is completely confidential. The study team respects and protects your privacy.

About the study

The HERA Study is evaluating an investigational drug to see if it may slow down the progression of Alport syndrome in men living with the condition. The investigational drug works differently from other medications you may be taking for this condition.


You may qualify to participate in the HERA Study if you:

  • Are male (between 18 and 60 years old)
  • Have been diagnosed with Alport syndrome
  • Are taking medication for Alport syndrome
  • Are not currently on dialysis
  • Have not had a kidney transplant

You may be able to continue your current Alport syndrome medication during the study.

To see if you pre-qualify, Call 844-704-0404 to speak to a study representative

The information you provide is completely confidential. The study team respects and protects your privacy.

Why Participate?

If you qualify to participate, the study team, which includes doctors, nurses and other clinicians, will be available to answer your questions and help you throughout the duration of the research study.

Should you qualify and decide to enroll, you will:

  • Receive all study-related care at no cost
  • Receive close monitoring during the study
  • Receive compensation for time and travel expenses
  • Have the opportunity to potentially help determine better treatments for patients with Alport syndrome

To see if you pre-qualify, Call 844-704-0404 to speak to a study representative

The information you provide is completely confidential. The study team respects and protects your privacy.